This sub-section contains valuable information on children's special
health needs. Click on the links to the right under Special Health Needs
on the topics covered below:
Who are children with special health care needs (SHCN)?
Children with special needs are "those children with developmental
disabilities, mental retardation, emotional disturbance, sensory or motor
impairment, or significant chronic illness who require special health
surveillance or specialized programs, interventions, technologies, or
facilities"
Other terms used by programs and agencies to describe children who have been
identified as having special needs include:
- children who are developmentally disabled, developmentally delayed, or at
risk for developmental delays
- children who are preschool developmentally delayed
- children with cognitive delays or disabilities
- children who are behaviorally-emotionally handicapped
- children with hearing loss or who are hearing impaired
- children with visual impairment or who are visually impaired
- children who are deaf-blind
- children with speech-language delays or disorders
- children who are speech-language impaired
- children with traumatic brain injury
- children with autism
- children with physical disabilities
- children who are orthopedically impaired
The numbers of children with SHCN are increasing. This is due to better
health care and increased placement of chronically ill children in homes. Just
as parents of children without special needs require childcare, so do parents of
special needs children. It is important to include children with SHCN in
childcare. Including children SHCN into programs with other children is
important for a number of reasons and is called inclusion.
Within this web is information on illnesses and disabilities that can assist
child care providers in extending their services to children with
SHCN.
Definition of Inclusion
Inclusion is the opportunity for children with special needs to participate
in programs and activities alongside children without special needs. Other words
used to describe these opportunities include mainstreaming, reverse
mainstreaming, and integration. Mainstreaming typically describes the
participation of a child with special needs in a program or activity originally
designed for children without disabilities. When programs designed to serve
children with special needs extend their enrollment to children who are
typically developing, this approach may be referred to as reverse mainstreaming.
Integrated programs and activities are those that include children with and
without special needs. All of these opportunities could be described as
inclusive. Inclusion is children learning and growing together regardless of
their abilities. Some agencies and programs may use some or all of these terms
with very specific definitions. In conversations related to early childhood
inclusion, participants may need to define and clarify terms to ensure effective
communication.
Just as environments for infants and toddlers are different from environments
for older preschoolers, so is the focus of inclusion. Because the most natural
environment for infants and toddlers is their home with their families, the
focus of inclusion for this age group is ensuring the inclusion of the child
into the family and the family into the community. Emphasis is placed on
ensuring that the child and family experience mutually satisfying interactions.
Equally important is enabling the family to participate in the same activities
that they would have enjoyed if their child had not had disabilities.
During the preschool years, the focus of inclusion changes. The focus of
inclusion for preschoolers with special needs is on social competence. As
children become more interested in their peers, it is important to focus on
those skills that enable children to get along with others-sharing, taking
turns, conversing with peers, resolving conflicts.
Rationale for Inclusion
a) Ethical Reasons
A major argument of advocates for inclusion has been the rights of children
with special needs to participate in the activities of daily life available to
other children. Many people view inclusion as a moral value and therefore need
no legal or empirical foundation on which to stand. Inclusion is simply the
right thing to do.
b) Social Reasons
Participating in activities with their peers who are typically developing is
important for children with disabilities as they learn skills that will help
them get along in the world. In a review of the research on the outcomes for
children with special needs, Buysse and Bailey found that children in inclusive
settings tend to have an advantage in social and behavioral areas over children
in segregated settings. Children without disabilities continue to grow and
develop in a typical way and can learn much about themselves by being around
children who have disabilities. They may have a greater understanding of
disabilities and increase their acceptance of others who are different from
themselves.
c) Educational Reasons
Young children with disabilities need the same enriching early experiences as
children who are typically developing. When compared to segregated programs or
classrooms, inclusive programs offer more opportunities for children to learn
naturally through play, use a greater variety of materials in new and different
ways, interact with other children, and explore the environment.
d) Legal Reasons
The Americans with Disabilities Act (ADA), passed in 1991,
prohibits the discrimination of persons with disabilities in employment, public
services, public accommodations, and transportation. The part of this law that
affects child care programs is the section on public accommodations. In addition
to hotels, theatres, and restaurants, public accommodations refers to private
programs such as family child care homes, child care centers, nursery schools,
and preschools. Programs do not have to receive public funding to be considered
public accommodations.
ADA requires child care programs to consider making changes in the following
areas:
- First, child care programs must eliminate eligibility criteria that screen
out or tend to screen out a child with a disability. For example, a child care
program must eliminate a provision in the admissions policy which refuses
enrollment to children who have not been toilet trained. Such a policy
discriminates against children who, because of their disability, have not yet
been toilet trained or may never be toilet trained.
- Second, programs must make reasonable modifications in their policies,
practices, and procedures in order to accommodate the child with a disability.
For example, a program may make a schedule change for a child who takes
medication and needs a morning nap.
- Third, child care programs are required to provide auxiliary aids and
services for those children with disabilities affecting hearing, vision, or
speech. Auxiliary aids and services refer to services and devices designed to
ensure effective communication. Examples include learning some sign language to
improve communication with a child who has a hearing impairment, and putting a
Braille label on the cubby of a child who is blind.
- Finally, architectural barriers that prevent access to services must
be removed if removal is readily achievable. For example, furniture may need to
be rearranged to enable a child in a wheelchair to access all areas of the
program.
Benefits of Inclusion
a) For children with special needs
With appropriate support, children with special needs in inclusive settings
maintain their rate of developmental growth. In fact, research shows an increase
in their social skills as compared to children in segregated settings. The
stimulation of an inclusive environment increases social interaction with peers
and promotes more complex play with toys and materials
b) For children without special needs
An inclusive environment provides opportunities for children who are
typically developing to learn about differences in human growth and development.
They gain a greater understanding of disabilities and their effects on
development. Their experiences with children who have a range of abilities may
lead them to become more accepting of people who are different.
c) For families of children with special needs
The family may develop more positive attitudes toward their child with
special needs who is enrolled in a "regular" child care program. An inclusive
setting provides the family a "real world" perspective for interpreting their
child’s growth and development. Being able to observe their child’s peers who
are typically developing may increase the family’s knowledge of typical child
development. Furthermore, opportunities to participate in activities with
families of children without special needs may decrease feelings of social
isolation.
d) For families of children without special needs
An inclusive program provides families and their children an opportunity to
learn about differences in human growth and development. Positive experiences
with children with special needs may increase their knowledge and understanding
of persons with disabilities. Opportunities to meet and get to know the families
of children with special needs may increase their sensitivity to the challenges
of caring for a child with a disability.
e) For teachers
Experience in inclusive settings may help teachers develop more positive
attitudes toward inclusion. They may become more aware of the individual needs
of all children. Some teachers may receive additional training for special needs
children that is beneficial to all children such as promoting social
interactions. Collaboration with specialized therapists such as speech-language
pathologists, occupational therapists, and physical therapists may provide
teachers with opportunities to increase their knowledge about specific
developmental areas.
f) For the community
As communities become more diverse ethnically and culturally, inclusion may
influence society to be more accepting of persons who are different. The "real
world" experience for persons with special needs may help them to become
contributing members of society rather than dependent on
society.